I have one that has graduated from high school who has normal kidney function, so one of the interesting things we hope to see at one point in the future is adding cystinosis to the tests done on a bloodspot. Paul Grimm More Quotes by Paul Grimm More Quotes From Paul Grimm In patients who are on the regular drug, the four-times-a-day drug (cystagon), they have tremendous amounts of family disruption because you have to give the drug every six hours around the clock, and if you think about it, for a lot of families that just can’t happen— if there’s a single-parent family or [they have] a lot of kids, or if the family isn’t very well off, or if mom and dad both work. Paul Grimm health We’ve transplanted teachers to students and family friends to kids, and between members of a congregation, i’ve had families who met in the waiting room and got to know each other, but actually donating a kidney to one family member to another? Nope, that’s got to be a first. Paul Grimm health If they keep taking their medications regularly, hopefully they’ll lead long, healthy and happy lives. Paul Grimm health It was an imposition, so I think it’s really impressive that almost every single family except for one elected to continue taking cysteamine. Paul Grimm health We’re not holding our breath, but we’re really hoping for it. Paul Grimm health Teenagers want to be attractive to the opposite sex, and they’re horribly concerned about their appearance, if they take a drug that makes them smell bad, it’s no wonder teens don’t comply, and so a lot of kids stop taking the medication. Paul Grimm health
