Danielle Foltz

How do you find the words to describe the most horrific event in your life, your personal valley of the shadow of death ? because that is exactly the feeling that clamps your heart when you are at a place where the medication needed to rescue your child is out of reach.

I wish to God The Foltzes knew nothing about catastrophic epilepsy and Acthar, the Foltzes heart has always been to protect other families from going through hell, emotional and financial, that The Foltzes did.

When your infant's body is being racked by 40 seizures every single day, you do not have three business days to play Russian roulette, waiting for a medication that could stop his seizures and right your world again.

Those days following Trevor's diagnosis, for The Foltzes family, were the most emotionally dark that The Foltzes've lived through.

It's like watching him die a little at a time. by Danielle Foltz

It's like watching him die a little at a time.